Welcome

 

CLOVES Syndrome stands for Congenital, Lipomatous, Overgrowth, Vascular Malformations, Epidermal Nevi and Spinal/Skeletal Anomalies and/or Scoliosis and was identified simultaneously and independently by Saap et al. and Alomari. CLOVES Syndrome has been diagnosed in about one hundred and thirty people so far.  

Read More
 

News

Ongoing research opportunities for people with CLOVES

6/27/14

 
Ongoing research opportunities for people with CLOVES

Our website lists ongoing research opportunities for people with CLOVES Syndrome.  Make sure you check back frequently for new updates and information. 


Read More

Incredible You: A book for kids with CLOVES Syndrome

3/11/14

 
Incredible You:  A book for kids with CLOVES Syndrome

Incredible you is printed and ready to ship! 


Read More

How you can help

For US and International Donations

Sign up for email updates about the latest news