We have a rapidly growing community of people with CLOVES and a network of supporters who want to learn more. Awareness leads to action and to understanding more about the disease and the unique needs of our community. We are thankful to the people with CLOVES who have shared their stories with us.
It was only a few years ago that I was officially diagnosed with CLOVES. To have an official diagnosis answers a lot of questions and it’s great to know I’m not alone. Even though I have had limitations all my life, it hasn’t stopped me from achieving my goals. I have a beautiful wife and 3 amazing boys. I own my own coffee roasting business. I thank God for all the breakthroughs in medical treatments so I can live life to the fullest. I hope and pray there will be more breakthroughs in medicine and a cure.