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Mikaela Hope's Story


Mikaela Hope is, and always has been, my hero. With everything she has gone through over the past 8 years, she has never lost her happy cheerfulness, her wacky sense of humor, her loving nature, her desire for fun and adventure...or her hope! She is full of sass, sometimes frustratingly independent, and stubbornly strong-willed! Her teachers always describe her as a "trooper" and a "sweet little girl" who daily pushes herself beyond her pain and fatigue so that she doesn't miss a thing!

Mikaela never thinks of herself as any different from the other kids, and refuses to dwell on the countless hospitalizations, surgeries, procedures, illnesses, medications, trips to doctors and clinics, or days and weeks missed from school. She doesn't complain about the many things she has had to miss out on, but greets every new day with a smile on her beautiful, sweet face.

There was a time when I didn't think Mikaela would make it this far...that I would lose her...but thankfully she continues to bless my life and teach me every day how to be a better, stronger Mom, and a better, stronger person...all while dreaming of her future career as a chef!

Of course there are moments when Mikaela curses her "disease" and wishes she had been born healthy, but then she simply lifts her head high and stands strong through the hard times.

Courage and bravery is not the absence of fear, but the ability to face what is scary or unpleasant in spite of fear...and that is my daughter hero.

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