General Resources

Companies that sell two different sizes of shoes - List of companies that provide two different shoe sizes

Video about Croc Modification - Created by parents of a child with CLOVES

Developmental Milestones for Children - Ages and Stages by the University of Michegan and American Academy of Pediatrics

Croc shoe modification plan - From the Proteus Syndrome Foundation's website. Many people say this process works well

Complex Child E-Magazine - Complex Child is a monthly online magazine written by parents of children with special healthcare needs and disabilities

Providers who can assist with Air Travel

List of private and commercial providers who may be able to get you/your child to a multidisciplinary Vascular Anomalies Center, for medical treatment

Angel Flight East is a nonprofit organization that facilitates free air transportation to children and adults in need of medical treatment far from home.  Volunteer pilots use their own aircraft and pay for all costs of the flight.  AFE covers a 14 state territory from Virginia to Ohio to Maine and for destinations beyond that, we link up with other volunteer pilot organizations.  

 

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This website is not intended for medical diagnostic use or as a replacement for professional medical consultation. No information or images on this site may be used or reproduced without the written consent of CLOVES Syndrome Community. CLOVES Syndrome Community is a 501c3 not for profit organization. All donations are tax exempt.

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