Mikaela Hope's Story

Mikaela Hope is, & always has been, my hero. With everything she has gone through over the past 8 years, she has never lost her happy cheerfulness, her wacky sense of humor, her loving nature, her desire for fun & adventure...or her hope! She is full of sass, sometimes frustratingly independent, & stubbornly strong-willed! Her teachers always describe her as a "trooper" & a "sweet little girl" who daily pushes herself beyond her pain & fatigue so that she doesn't miss a thing!

Mikaela never thinks of herself as any different from the other kids, & refuses to dwell on the countless hospitalizations, surgeries, procedures, illnesses, medications, trips to doctors & clinics, or days & weeks missed from school. She doesn't complain about the many things she has had to miss out on, but greets every new day with a smile on her beautiful, sweet face.

There was a time when I didn't think Mikaela would make it this far...that I would lose her...but thankfully she continues to bless my life & teach me every day how to be a better, stronger Mom, & a better, stronger person...all while dreaming of her future career as a chef!

Of course there are moments when Mikaela curses her "disease" & wishes she had been born healthy, but then she simply lifts her head high & stands strong through the hard times.

Courage & bravery is not the absence of fear, but the ability to face what is scary or unpleasant in spite of fear...& that is my daughter Mikaela...my hero.

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