Newly Diagnosed? Welcome to our Community

Welcome!

You are probably visiting this page because you or someone you know was recently diagnosed with CLOVES Syndrome or CLOVES-like Syndrome. We would like to welcome you to our community and share with you all of the resources we have to offer. 

Our online support group:

On Facebook, please friend our welcome account to be added to our secret/non-searchable group on Facebook

https://www.facebook.com/WelcometoCLOVESCommunity

E-Mail Newsletter http://eepurl.com/swcG9

Online Store http://www.zazzle.com/clovescommunity

Our CLOVES Screening Guidlelines developed by Boston Children's Hospital are a great resource to share with your providers.

Our Frequently Asked Questions page is a great place for information.  

Sign up for our CLOVES registry to stay up to date about research and ways to contribute data.

We feel that it is important to connect with others who understand what you are going through and can offer support during difficult times. We encourage you to get involved by meeting other families online.

If you would like CLOVES Syndrome Community to mail you a welcome packet, please email us at clovessyndrome@gmail.com

Kristen Davis, CLOVES Syndrome Community

 

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This website is not intended for medical diagnostic use or as a replacement for professional medical consultation. No information or images on this site may be used or reproduced without the written consent of CLOVES Syndrome Community. CLOVES Syndrome Community is a 501c3 not for profit organization. All donations are tax exempt.

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