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Research Donation to Boston Children's Hospital

August 9, 2017

As our 4th CLOVES Awareness Day comes to an end, we wanted to let you know that CLOVEs Syndrome Community is making a $10,000 research donation to Boston Children's Hospital.


This donation will directly support the current CLOVES/PIK3ca animal models and investigation, which will eventually lead to additional treatments and better quality of life for those who we love.


This donation would not be possible with the hard work, sweat, passion and dedication of our Board of Directors, Brenda AlexanderEmily McCraw BurgessAmanda MartinAshley Davis McNamara and Adrienne Guier. This donation would also not be possible without our ever-growing base of small and large donors. Every donation we receive matters.


Thank you, thank you, thank you for supporting the work that we do!

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