Family Resources
Books and articles on Body Image, Differences, Coping
Resource list about issues related to self esteem, stress and parenting a child with special needs
Providers who can assist with Air Travel
List of private and commercial providers who may be able to get you/your child to a multidisciplinary Vascular Anomalies Center, for medical treatment
Companies that sell two different sizes of shoes
List of companies that provide two different shoe sizes
Adaptive Shoe List - Adaptive shoes and shoes made for orthotics.
Developmental Milestones for Children - Ages and Stages by the University of Michegan and American Academy of Pediatrics
Croc shoe modification plan - From the Proteus Syndrome Foundation's website. Many people say this process works great!
Complex Child E-Magazine - Complex Child is a monthly online magazine written by parents of children with special healthcare needs and disabilities
Rob Cares - A resource for caregivers to find support, info and encouragement.
One-Stop Resource Guide - Answers to commonly asked questions about finding resources in your community
How you can help
For US and International Donations
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This website is not intended for medical diagnostic use or as a replacement for professional medical consultation. No information or images on this site may be used or reproduced without the written consent of CLOVES Syndrome Community. CLOVES Syndrome Community is a 501c3 not for profit organization. All donations are tax exempt.