April 23, 2013 --- NEW Research Opportunity with National Institutes of Health (NIH)
New Discovery (5/31/12)
Opportunity for CLOVES Research
Unfortunately, there is no cure for CLOVES. Surgery and other types of medical interventions are the only treatments for CLOVES overgrowth, vascular anomalies and other related medical issues.
Dr. Matthew Warman and Dr. Kyle Kurek of Boston Children's Hospital are continuing to do research based gene sequencing for people with CLOVES. Patients with CLOVES and their families are encouraged to learn more about this gene sequencing opportunity by contacting the doctors who are doing the research. (contact info below)
If you are interested in participating in being part of this gene sequencing at Boston Children's Hospital, please contact Dr. Kyle Kurek at firstname.lastname@example.org or 617-355-4527 and Dr. Matthew Warman at email@example.com or 617-919-2371.