IP Address Your internet protocol ("IP") address is usually associated with the place from which you enter the internet, like your internet service provider, your company or your university. We may use your IP address to help diagnose problems with our server, gather broad demographic information, and administer our web site.
Gathering and Use We will only collect your personal information when you voluntarily sign-up for a membership account in order to access certain areas of our site, sign-up for our mailing lists, use our contact form or make a donation. Access to our web site is generally unrestricted, and you may browse it anonymously. Information we collect from you will never be sold or given to third-parties without first offering you the opportunity to opt-out of such sharing.
Mailing Lists If you have signed up for email updates from us, you will receive an email newsletter informing you of our activities and relevant news. You may choose not to receive further email messages by clicking the "unsubscribe" link at the bottom of the email.
Photos All photos on this website have been given to CLOVES Syndrome Community with the understanding that they will be on the website, social media outlets (Facebook, Twitter, flickr) and in other awareness materials. Please let us know if you would like any images removed, or have specific requests about you/your child's photos.