The complex vascular anomalies community advocates have jointly collaborated with our medical advisors to develop a FAQ information sheet for COVID-19 information as it relates to our populations. Please remember this is for general information purposes only. It is not intended to be a substitute for professional medical advice, diagnosis or treatment.
Specific situations might cause a variance in response, and if you are not sure, always seek the advice of your physician or other health care provider as they are the most familiar with your situation.
There will likely be changes to this document in the weeks to come.
Patient organizations working together for our affected families, on this joint effort, include:
Mellenee Finger - K-T Support
Dana Wolinsky - Project FAVA
Kristen Davis - CLOVES Syndrome Community
Jack Kelly - Lymphangiomatosis and Gorham's Disease Alliance (LGDA)
Karla Hall - National Organization of Vascular Anomalies (NOVA)
Linda Rozell-Shannon - Vascular Birthmarks Foundation (VBF)
Please let us know if you have any additional questions by emailing [email protected]