More information coming soon!
The CLOVES Syndrome Community Family Advisory Council is a collaborative effort between CLOVES Syndrome Community Board of Directors and people with CLOVES and their family members.
If chosen to serve, you will be committing to a two-year term and will be required to sign a volunteer waiver and a non-disclosure agreement.
You must be 18 years or older to be considered for a Family Advisory Council position.
You/your family member must have been diagnosed with CLOVES for at least two years.