We're riding this year as an Independent Fundraising team at the Million Dollar Bike Ride in Philadelphia on June 13, 2020. Our team is the CLOVES Riders for Research.
We're looking for team members to commit to a fundraising goal and to show up and ride with us! There are options of 13, 34 and 72 miles.
CLOVES Syndrome Community aims to accelerate treatment options, increase the scientific and medical knowledge base, and expand opportunities for an improved quality of life for people with CLOVES and PIK3CA related overgrowth spectrum (PROS) conditions. In the near future, we will be creating a CLOVES and PROS Collaborative Research Network, which will include people with CLOVES/PROS and their caregivers, physicians, scientists, and researchers, to work collaboratively on understanding the PIK3CA pathway in this disease.
Sign up at https://www.milliondollarbikeride.org/registration and scroll to the bottom of the page to chose "CLOVES Riders for Research."
You can find our fundraising guidelines for the CLOVES Riders for Research here.
Are you interested in sponsoring our CLOVES Riders for Research Team? Sponsorship Opportunties for individuals and businesses are here.