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October 16, 2019
October 15, 2019Dear Friend of CLOVES Syndrome Community: CLOVES Syndrome Community’s mission is to improve the quality of life of people living with CLOVES Syndrome through...
September 17, 2019
Written by Ralitsa Madsen on 7/28/19. Shared with us by Mandy Sellars of GoPI3Ks (https://gopi3ks.com) regarding the PI3K/PTEN Scientific Meeting in Buxton over the summer of...
September 11, 2019
Join us Sunday October 20th from 10am - 1pm for Addy's Run at Great Neck Elementary School in Waterford, CT. Addy’s annual 5k run/walk to help raise awareness for CLOVES...
July 10, 2019
With Back to School approaching, the CLOVES Syndrome Community (CSC) is excited to relaunch our Back to School Bucks for a FIFTH year. CSC Back to School Bucks is a cash award...
March 10, 2019
Thanks to your support and our successful Fall 2018 Fundraising efforts, we've made another research donation. On February 27, 2019 we donated $20,000 to Canaud Lab for their...
September 26, 2018
Save the date for the next session of CLOVES Family Camp! We're pleased to announce that we'll be partnering with Zebra Crossings for another session of Family Camp. The 2nd...
August 15, 2018
It's been just over a month since we returned home from our first CLOVES Family Camp and we're still thinking about what fun we had!  It was truly a wonderful experience being...
June 14, 2018
A medical first: CLOVES Syndrome and overgrowth syndromes:remarkable improvement in the health of 19 pediatric and adult patients using a new therapeutic strategy. Dr. Guillaume...
January 22, 2018
We are pleased to announce an additional $10,000 research donation to Boston Children's Hospital.  We have committed to support a project looking for risk factors predicting...
August 9, 2017
As our 4th CLOVES Awareness Day comes to an end, we wanted to let you know that CLOVEs Syndrome Community is making a $10,000 research donation to Boston Children's...
Cloves Awareness Tshirt
June 30, 2017
Check out our Booster Tee Shirt Campaign for CLOVES Awareness Day on August 3rd! We love someone with CLOVES Syndrome. If you are here, we bet you do too!...
cloves awareness day
July 22, 2016
Please join us in spreading awareness about CLOVES Syndrome on August 3rd.Check out our Awareness Page on our website for ways to help us to spread awareness about this very rare...
genetic mosaic
March 17, 2015
Our genes can mutate at any point in our lives. In rare cases, a mutation randomly occurs in a single cell of an embryo and gets carried forward only in the descendants of that...
contact registry
October 12, 2014
The CLOVES Syndrome Community contact registry will be used to inform individuals with CLOVES Syndrome and their guardians about:discoveries about CLOVES Syndrome that may impact...
"Incredible You" Book
March 11, 2014
This book was created by author Lindsay Passodelis, in collaboration with CLOVES Syndrome Community. This book is geared towards kids who are between the ages of 8 and 13 years...

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