Introducing the International PIK3CA Related Conditions Patient Registry

Make a difference for all affected with PIK3CA related conditions by participating in our multi-lingual patient registry

A patient registry is an online system set up to collect, store, retrieve, and analyze information on individuals diagnosed with a rare disease. By joining the PIK3CA Related Conditions International Patient Registry you can choose to safely and securely share your de-identified data with researchers, as we all actively work to improve the quality of life for people affected by PIK3CA related conditions. Your participation in our patient registry will help us to advance our goals of finding treatments, options and hopefully a cure for these rare conditions in our lifetime.

Bring all your health information together in one place

With Backpack Health app you can manage your own or your child’s health records, track symptoms and share information in multiple languages with healthcare specialists, providers and caregivers.

If you have any questions about Backpack Health, please visit https://intercom.help/backpackhealth/en/ or send an email to [email protected] or [email protected].