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Coping/Support

In this section, you'll find our two CLOVES publications for kids,  blogs, e-magazines, access to our secret FaceBook group, as well as resources for coping with progressive and chronic illness. 

Four Leaf Clovers - A book for young children with CLOVES
The story of Four Leaf Clovers draws parallels between children with CLOVES Syndrome and those without, focusing on acceptance, inclusion, and diversity. Four Leaf Clovers strives to not only illustrate acceptance but to shine a light on some simple ways being different can have its benefits. While it was written with CLOVES Syndrome in mind, Four Leaf Clovers is truly a story about embracing differences of all kinds.  The age range for this book is approximately 8 and under, but the message is for people of all ages!

Four Leaf Clovers was written by Lauren Beaureguard, in collaboration with Kristen Davis, Executive Director of CLOVES Syndrome Community, and beautifully illustrated by artist Kate Fitzpatrick.

Thanks to a generous print sponsor, we are able to disperse a limited number of copies of Four Leaf Clovers to children with CLOVES/PROS conditions at no cost to families. Please complete this form to request your copy of Four Leaf Clovers.  

PDF Copy of Four Leaf Clovers is available for download here.   


Incredible You - A Book for Kids with CLOVES
This book was created by author Lindsay Passodelis, in collaboration with CLOVES Syndrome Community. This book is geared towards kids who are between the ages of 8 and 13 years old, and is suitable for kids with CLOVES, their friends, and family members.

In this book you will meet Kate, a ten year old with CLOVES Syndrome. You will read about Kate's medical experiences, how she talks about CLOVES, her friendships, how she copes and how she loves to have fun.

There are three ways to access this resource

  1. Suggested donation for this book is $25, to cover our costs to print and ship. If you put a check in the mail, enclose a note with how many copies of the book you would like.
    Donation options here
    If you'd like a copy and cannot afford the $25 suggested donation, please contact us at [email protected], as a generous donor has provided us with the ability to gift a limited number of copies to people with CLOVES.
  2. You can also buy copies directly from Blurb here.  This is a great option if you'd like multiple copies as we have limited printed stock in our office.  
  3. Print out the PDF of this book for free.  

 

 To join our secret Facebook Group for people with CLOVES and their families, please friend  our welcome account .

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