CLOVES Syndrome Community is hosting our FIFTH Family Conference at Boston Children's Hospital on June 8, 2019.
Join us for a day of learning, support, fun and connection. You'll hear about about the latest research, treatment and management of CLOVES Syndrome and have the opportunity to meet with other families and people with CLOVES.
We're pleased to have Rick Guidotti of Positive Exposure, Dr. Guillaume Canaud of Hôpital Necker-Enfants malades and Dr. Denise Adams of Boston Children's Hospital as our confirmed presenters so far.
Activities for children ages 5-12 and teens will be provided by Zebra Crossings with support from Boston Children’s Hospital Child Life Services staff/volunteers.
All the conference details can be found here: https://clovessyndrome.org/content/biennial-family-conference
***Any CLOVES family or person with CLOVES who needs a partial or full conference registration scholarship will be granted one. Please email Kristen at firstname.lastname@example.org to attain the discount code for registration BEFORE you register****
Registration closes on April 26th or sooner if we reach capacity. Register here: https://events.eventzilla.net/e/2019-cloves-family-conference-2138715223