Join us for the 8th annual Addy’s Run 5K to help raise awareness and funds for CLOVES Syndrome.
Adalynn “Addy” is a Waterford, CT resident born with CLOVES Syndrome in April 2017. Each year, her family and friends come together to hold Addy’s Run, a 5K run/walk race with a mission to raise awareness of CLOVES Syndrome and help those who are affected by it.
All proceeds from Addy’s Run support CLOVES Syndrome Community, the foremost patient-led advocacy organization for CLOVES Syndrome. Your donation will help CLOVES Syndrome Community (CSC) improve the lives of those affected by this ultra-rare condition through support, research, and education.
CLOVES Syndrome Community strives to:
🍀 Create opportunities for connection across our community, so families and individuals can find a support system.
🍀 Collaborate with scientists and industry to better understand CLOVES and help develop new treatment options.
🍀 Drive awareness of CLOVES worldwide so more people know about this rare condition.
CSC envisions a future where people with PROS conditions live long, full, and vibrant lives with access to excellent medical care, and we’re making it happen thanks to donors like you!
Donations by check can be made out to CLOVES Syndrome Community, and mailed to
CLOVES Syndrome Community
6716 Eastside Drive NE, Ste 1-116
Browns Point WA 98422
Thank you for sharing in our mission to improve the lives of those affected by CLOVES Syndrome. 🍀