Events

2023 CLOVES Family & Scientific Engagement Conference

2023 CLOVES Family & Scientific Engagement Conference

Join us for the 2023 CLOVES Family and Scientific Engagement Conference on Saturday June 3, 2023 in Cleveland, Ohio.   We are bringing together people with CLOVES and their families, clinicians, scientists, pharmaceutical leaders and supporters to connect, learn and…

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Million Dollar Bike Ride 2023

Million Dollar Bike Ride 2023

We are excited to announce that we are once again participating in the Million Dollar Bike Ride fundraiser on June 1oth in Philadelphia. Join Team CLOVES Riders for Research and raise funds to accelerate treatment and research. Not able to…

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Betsy’s Camp

Betsy’s Camp

No camp scheduled for summer of 2023! See you on the lake in 2024!! CLOVES Family Camp is an annual opportunity that focuses on community, connection, relaxation and fun. In 2020, CLOVES Family Camp was renamed Betsy’s Camp, in memory of…

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2022 Million Dollar Bike Ride

2022 Million Dollar Bike Ride

We’re riding again this year as an Independent Fundraising team at the in person Million Dollar Bike Ride on Saturday June 11, 2022.  Our team is the CLOVES Riders for Research. We’re looking for team members to register to ride, commit…

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Request for Proposals: 2022 Research Grant Program

Request for Proposals: 2022 Research Grant Program

CLOVES Syndrome (“CLOVES”) is a rare disorder. CLOVES syndrome is rare and very variable; ranging from mild to severe. The common features in most patients allow for proper diagnosis and distinction from other syndromes. The most consistent features of CLOVES…

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