Events

Betsy’s Camp

Betsy’s Camp

CLOVES Family Camp is an annual opportunity that focuses on community, connection, relaxation and fun. In 2020, CLOVES Family Camp was renamed Betsy’s Camp, in memory of an exceptional woman, Betsy…

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Ride, wheel or walk your way with us on June 11, 2022

Ride, wheel or walk your way with us on June 11, 2022

We are excited to announce that we are once again participating in the Million Dollar Bike Ride fundraiser on June 11th in Philadelphia. Not able to travel to Philly? Don’t…

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2022 Million Dollar Bike Ride

2022 Million Dollar Bike Ride

We’re riding again this year as an Independent Fundraising team at the in person Million Dollar Bike Ride on Saturday June 11, 2022.  Our team is the CLOVES Riders for Research.…

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Request for Proposals: 2022 Research Grant Program

Request for Proposals: 2022 Research Grant Program

CLOVES Syndrome (“CLOVES”) is a rare disorder. CLOVES syndrome is rare and very variable; ranging from mild to severe. The common features in most patients allow for proper diagnosis and…

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International Scientific Meeting for PIK3CA Related Conditions

International Scientific Meeting for PIK3CA Related Conditions

Thursday October 28 – Friday October 29, 2021 The International Scientific Meeting for PIK3CA Related Conditions is hosted and sponsored by CLOVES Syndrome Community, in collaboration with Chairs Dr. Denise…

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Biennial Family Conference

Biennial Family Conference

Registration is now closed. Questions? Email us at [email protected] Join us on Friday August 6th from 6-8pm EST for our opening keynote speaker and social event and Saturday August 7th…

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Awareness Day

Awareness Day

CLOVES Awareness day is every year on August 3rd.  Join us in raising awareness, support, and funds for CLOVES Syndrome in the weeks leading up to August 3rd. We also post…

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VACOM Study Information Session

VACOM Study Information Session

Join Dr. Bryan Sisk and Dr. Anna Kerr for an information session on Saturday June 26th from 1-2:30 EST to learn about the VACOM research study. The goal of this…

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