Events

International Scientific Meeting for PIK3CA Related Conditions

International Scientific Meeting for PIK3CA Related Conditions

Thursday October 28 – Friday October 29, 2021 The International Scientific Meeting for PIK3CA Related Conditions is hosted and sponsored by CLOVES Syndrome Community, in collaboration with Chairs Dr. Denise…

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VACOM Study Information Session

VACOM Study Information Session

Join Dr. Bryan Sisk and Dr. Anna Kerr for an information session on Saturday June 26th from 1-2:30 EST to learn about the VACOM research study. The goal of this…

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Biennial Family Conference

Biennial Family Conference

Registration is open! Join us on Friday August 6th from 6-8pm EST for our opening keynote speaker and social event and Saturday August 7th from 10am to 3pm EST for…

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2021 Million Dollar Bike Ride

2021 Million Dollar Bike Ride

We’re riding again this year as an Independent Fundraising team at the virtual Million Dollar Bike Ride on June 12, 2021.  Our team is the CLOVES Riders for Research. We’re looking…

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Betsy’s Camp

Betsy’s Camp

CLOVES Family Camp is an annual opportunity that focuses on community, connection, relaxation and fun. Beginning in 2020, CLOVES Family Camp will be renamed Betsy’s Camp, in memory of an exceptional…

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Awareness Day

Awareness Day

CLOVES Awareness day is every year on August 3rd.  Join us in raising awareness, support, and funds for CLOVES Syndrome in the weeks leading up to August 3rd. We also post…

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