News | Cloves Syndrome Community

Accelerating research with AllStripes

Kristen DavisApril 9, 20212 min read

CLOVES Syndrome Community is excited to partner with the medical data science company AllStripes to create a research database that will power new PIK3CA-related overgrowth spectrum (PROS) research studies. To…

Covid-19

adminDecember 22, 20202 min read

Surveillance Epidemiology of Coronavirus (COVID-19) Under Research Exclusion for Vascular Anomalies. Researchers need information on COVID-19 and vascular anomalies. If you have a vascular anomaly and contract COVID-19, please ask your…

News from the lab – December 2020

adminDecember 22, 20205 min read

Dear GoPI3Ks/CLOVES community, When Mandy Sellars approached me about a contribution to this year’s GoPI3Ks newsletter, I could not help asking myself the same old question: “Is this year ALREADY…

Spreading awareness for CLOVES Awareness Day

adminJuly 28, 20201 min read

For this year’s CLOVES Awareness Day on August 3rd, we wanted to share the voices of our community. We asked our community to share challenges, worries and what matters most…

CLOVES Syndrome Community Receives $450,000 Award from Chan Zuckerberg Initiative

adminFebruary 3, 20204 min read

CLOVES Syndrome Community Receives $450,000 Award from Chan Zuckerberg Initiative Transformative grant will empower a patient community to accelerate collaborative research against CLOVES Syndrome, a rare genetic disorder KENNEBUNK, ME –…