News

Our 2nd 2021 Research Recipient

Our 2nd 2021 Research Recipient

adminSeptember 7, 20212 min read

We are pleased to announce the second recipient of our 2021 Research Grant.  Dr. Robert Semple will receive a $25,000 grant for the project titled “Human Pluripotent Stem Cells as…

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Our 2021 Research Grant Recipient

Our 2021 Research Grant Recipient

Kristen DavisMay 28, 20212 min read

We are pleased to announce the recipient of our 2021 Research Grant.  Ana Angulo-Urarte will receive a $25,000 grant for the project titled “Identifying the molecular impact of PIK3CA variants…

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Vascular Anomalies Communication (VACOM) Research Study

Vascular Anomalies Communication (VACOM) Research Study

Kristen DavisMay 28, 20212 min read

We’re pleased to be supporting Dr. Bryan Sisk’s research study titled “Vascular anomalies communication” (VACOM) with a $10,000 grant.   Please read about this research study below.  We’ll share additional information…

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Accelerating research with AllStripes

Accelerating research with AllStripes

Kristen DavisApril 9, 20212 min read

CLOVES Syndrome Community is excited to partner with the medical data science company AllStripes to create a research database that will power new PIK3CA-related overgrowth spectrum (PROS) research studies. To…

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Covid-19

Covid-19

adminDecember 22, 20202 min read

Surveillance Epidemiology of Coronavirus (COVID-19) Under Research Exclusion for Vascular Anomalies. Researchers need information on COVID-19 and vascular anomalies. If you have a vascular anomaly and contract COVID-19, please ask your…

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News from the lab – December 2020

News from the lab – December 2020

adminDecember 22, 20205 min read

Dear GoPI3Ks/CLOVES community,  When Mandy Sellars approached me about a contribution to this year’s GoPI3Ks newsletter, I could not help asking myself the same old question: “Is this year ALREADY…

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Spreading awareness for CLOVES Awareness Day

Spreading awareness for CLOVES Awareness Day

adminJuly 28, 20201 min read

For this year’s CLOVES Awareness Day on August 3rd, we wanted to share the voices of our community.  We asked our community to share challenges, worries and what matters most…

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CLOVES Syndrome Community Receives $450,000 Award from Chan Zuckerberg Initiative

CLOVES Syndrome Community Receives $450,000 Award from Chan Zuckerberg Initiative

adminFebruary 3, 20204 min read

CLOVES Syndrome Community Receives $450,000 Award from Chan Zuckerberg Initiative Transformative grant will empower a patient community to accelerate collaborative research against CLOVES Syndrome, a rare genetic disorder KENNEBUNK, ME –…

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$20,000 Research Donation

$20,000 Research Donation

adminMarch 10, 20191 min read

Thanks to your support and our successful Fall 2018 Fundraising efforts, we’ve made another research donation. On February 27, 2019 we donated $20,000 to Canaud Lab for their continued work…

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