CSC Research News – Zebrafish Model Updates
Our research partners in the UK and Europe–Drs Hannah Brunsdon, Ralitsa R Madsen, Robert K. Semple, E. Elizabeth Patton, and more–just had a pre-print published detailing their work with Zebrafish and the PIK3CA gene–a project made possible by seed funding…
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2025 PROS Community Science Update
from Dr Ralitsa Madsen & Team Dear CLOVES Syndrome Community readers, As we approach the festive season, I am once again excited to share this year’s update with you. Writing this newsletter is always one of my favourite responsibilities of…
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THE EVOLVING LANDSCAPE OF CHARITABLE DEDUCTIONS
Josh Beauregard is a Corporate Controller, a CPA, and Dad to Maddox (13) and Kiki (10). He’s also a caregiver-member of our CLOVES Community, and was kind enough to write this blog post for us, helping demystify the changes coming to…
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CSC 2026 Summer Camps & Retreats
2026 brings two opportunities for families and people with CLOVES to connect in person. Betsy’s Family Camp & Retreat CSC’s annual retreat for people with CLOVES and their families. Originally called “CLOVES Camp”, the name was changed to Betsy’s Camp in…
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CLOVES SYNDROME COMMUNITY NAMES LAUREN BEAUREGARD AS NEW EXECUTIVE DIRECTOR
The Board of Directors of CLOVES Syndrome Community today announced the appointment of Lauren Beauregard as its new executive director, succeeding Kristen Davis who has guided the organization since 2009 to become a foremost patient-led advocacy organization for CLOVES Syndrome.…
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