CSC 2025 Summer Camps
We are excited to announce that for 2025, our community will have TWO Summer Camp opportunities to choose from! Read on for details. Betsy’s Family Camp & Retreat CSC’s annual summer camp for people with CLOVES and their families. Originally called…
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CLOVES SYNDROME COMMUNITY NAMES LAUREN BEAUREGARD AS NEW EXECUTIVE DIRECTOR
The Board of Directors of CLOVES Syndrome Community today announced the appointment of Lauren Beauregard as its new executive director, succeeding Kristen Davis who has guided the organization since 2009 to become a foremost patient-led advocacy organization for CLOVES Syndrome.…
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Research News from the Lab
Written by: Ralitsa Madsen At the time of writing this newsletter for CLOVES Syndrome Community (CSC), I realise that 29 February is just around the corner (24h and 15 minutes to go!). This is a special date for CSC and…
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CLOVES Syndrome Community and NORD® Launch Natural History Study of CLOVES Syndrome
Research study is open to participants worldwide to advance understanding and treatments for rare disease causing CLOVES Syndrome. December 1, 2023 — Today, CLOVES Syndrome Community and the National Organization for Rare Disorders (NORD) launched a study with global reach…
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Changes in leadership at CLOVES Syndrome Community
CLOVES SYNDROME COMMUNITY EXECUTIVE DIRECTOR KRISTEN DAVIS TO STEP DOWN NEXT YEAR KENNEBUNK, ME — (May 16, 2023) – The Board of Directors of CLOVES Syndrome Community today announced the planned transition of its longstanding Executive Director, Kristen Davis. Kristen informed…
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