Member Stories

We have a rapidly growing community of people with CLOVES and a network of supporters who want to learn more.  Awareness leads to action and to understanding more about the disease and the unique needs of our community.  We are thankful to the people with CLOVES who have shared their stories with us.

Meet Rad

Meet Rad

We found out our baby boy had CLOVES Syndrome when I was 7 months pregnant with him. We were fearful of the unknown but Rad came out happy, calm, and…

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Loaves for CLOVES

Loaves for CLOVES

Loaves for CLOVES started when my daughter was in 3rd grade. I had been wanting to find a way to raise awareness and money for CLOVES, to do something to…

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Meet Nate

Meet Nate

It was only a few years ago that I was officially diagnosed with CLOVES. To have an official diagnosis answers a lot of questions and it’s great to know I’m…

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