We have a rapidly growing community of people with CLOVES and a network of supporters who want to learn more. Awareness leads to action and to understanding more about the disease and the unique needs of our community. We are thankful to the people with CLOVES who have shared their stories with us.
Kiko is five years old. He loves to play. He’s sweet and full of life. He’s silly. He’s stubborn, but so smart beyond his years. He loves music and dancing. He’s shy, but once he’s comfortable, he’ll talk your ear…
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I was born with Cloves syndrome without being diagnosed at birth, despite the presence of angiomas on my neck and down to the soles of my feet, as well as some malformations.When I was five years old, I lost almost…
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My name is Vicente, but you can call me Vincho. I’m from Buenos Aires, Argentina. I was born in September 2023. My parents found out I had CLOVES when my mom was about 35 weeks pregnant but the diagnosis was…
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Hello! I’m Gabi from Brasil and I’m 23 years old. My parents didn’t get the diagnostic at birth, it was only after a couple of months that they found a doctor, who told them I had PROTEUS. Now as an…
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Baseball is Evans’s outlet in everyday life. His teammates are supportive and encouraging. We are thankful he is healthy enough to play and keep up with his teammates.
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