The clock is ticking down to Giving Tuesday on December 2nd, and CLOVES Syndrome Community is gearing up for a campaign focused on fun, friends, and powering a brighter future for our community! This year, we’re not just asking for donations—we’re inviting you to be part of the team and make an impact!
🌟 2025: A Year of Landmark Achievements
Thanks to the incredible generosity of our supporters, 2025 was a monumental year for the CLOVES community:
- Expanded Connection: We partnered with Camp Korey to help bring their first every Family Camp for kids with Vascular Anomalies to life, bringing the joy of summer camp to families on the west coast of the United States.
- Driving Research: CSC was featured at the International Drug Repurposing Conference for our experience in the successful repurposing of Alpelisib (Vijoice).
- Shaping Clinical Trials: We consulted directly with Relay Therapeutics on the design of their groundbreaking Re-Inspire clinical trial for a potential new treatment option for the PROS community.
- Vital Support: We helped a record number of families through our Back-to-School Bucks and provided direct assistance to 10 families through our Family Assistance Program.
- Growing Impact: Our patient registry grew by an astounding 55%, expanding research opportunities.
🚀 Fueling the Future: Our 2026 Goals
Your support this Giving Tuesday is essential for launching our exciting 2026 initiatives:
- New Learning Series: We’re developing a comprehensive year-long learning series to keep our community educated on the latest in care and living well with CLOVES. (More on that in the new year!)
- Mentorship: We will launch the Young Adult Mentorship Program, creating powerful peer connections across generations.
- Setting the Standard: We are committed to updating our CLOVES Syndrome Clinical Care Guidelines, ensuring the best protocols are available to physicians worldwide.
🎉 Ready for Some Fun? Join the #TeamCLOVES Challenge!
This Giving Tuesday, we want to make fundraising fun! We are calling on our dedicated friends and family to join Team CLOVES for Giving Tuesday and help us reach our goals.
Ready to compete for prizes? We are giving away sweet packages of CSC swag to two standout fundraisers:
- The team member who secures the most individual donors by the end of the campaign.
- The team member who raises the most funds overall.
It’s easy to get started and share your unique story:
- Join the Team: Visit https://givebutter.com/GivingTuesday-TeamCLOVES and click the “Fundraise” button.
- Build Your Page: Personalize your fundraising page! Include your story, images, and why the CLOVES Syndrome Community is important to you. Make it as simple or fancy as you please.
- Share Your Story: You’ll receive a unique URL. Share it with your friends and family so they know exactly where to direct their Giving Tuesday donations for the greatest impact.
It’s that simple! Join #TeamCLOVES today and let’s make December 2nd our biggest, most fun Giving Tuesday yet!
P.S. We want to give a special thanks to the McCraw Family, who have pledged a generous $5000 matching gift to our Giving Tuesday Campaign. From now until the end of the campaign (or until we meet the match, whichever comes first), each donation will be doubled thanks to this incredible family! Don’t miss your chance to double your impact this Giving Tuesday.
