Join us for the 8th annual Addy’s Run 5K to help raise awareness and funds for CLOVES Syndrome.
Adalynn “Addy” is a Waterford, CT resident born with CLOVES Syndrome in April 2017. Each year, her family and friends come together to hold Addy’s Run, a 5K run/walk race with a mission to raise awareness of CLOVES Syndrome and help those who are affected by it.
All proceeds from Addy’s Run support CLOVES Syndrome Community, the foremost patient-led advocacy organization for CLOVES Syndrome. Your donation will help CLOVES Syndrome Community (CSC) improve the lives of those affected by this ultra-rare condition through support, research, and education.
CLOVES Syndrome Community strives to:
🍀 Create opportunities for connection across our community, so families and individuals can find a support system.
🍀 Collaborate with scientists and industry to better understand CLOVES and help develop new treatment options.
🍀 Drive awareness of CLOVES worldwide so more people know about this rare condition.
CSC envisions a future where people with PROS conditions live long, full, and vibrant lives with access to excellent medical care, and we’re making it happen thanks to donors like you!
