Member Stories

We have a rapidly growing community of people with CLOVES and a network of supporters who want to learn more.  Awareness leads to action and to understanding more about the disease and the unique needs of our community.  We are thankful to the people with CLOVES who have shared their stories with us.

Loaves for CLOVES

Loaves for CLOVES

Loaves for CLOVES started when my daughter was in 3rd grade. I had been wanting to find a way to raise awareness and money for CLOVES, to do something to help. At the time, we thought a bake sale at…

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Meet Nate

Meet Nate

It was only a few years ago that I was officially diagnosed with CLOVES. To have an official diagnosis answers a lot of questions and it’s great to know I’m not alone. Even though I have had limitations all my…

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