2026 brings two opportunities for families and people with CLOVES to connect in person.
Betsy’s Family Camp & Retreat
CSC’s annual retreat for people with CLOVES and their families. Originally called “CLOVES Camp”, the name was changed to Betsy’s Camp in 2020 in memory of Betsy Lewis, an incredible woman who lived her life with CLOVES Syndrome. Last year, we added “Retreat” to the title because Betsy’s Camp is more than just a camp—it’s a refuge for people with CLOVES and caregivers alike.
When: June 19-22, 2026
Where: Camp Merrowvista in Center Tuftonboro, New Hampshire
Registration:
- under 5 years $30/camper
- 5-17 $100/camper
- 18+ $175/camper
- With a family cap at $575 (the maximum a family will pay to attend)
Scholarships to help cover registration fees are offered by Zebra Crossing for families in need. Visit the registration page to learn more.
Camp Korey Craniofacial and Vascular Anomalies Camp
CSC is helping spread the word about Camp Korey’s second Craniofacial and Vascular Anomalies Family Camp, for children with craniofacial and/or vascular anomalies and their families. Last year’s camp was a ton of fun! If you’re on the west coast, and travel to New Hampshire is out of reach, please consider applying for Camp Korey. (If you are an adult who would like to attend without a child who has a craniofacial or vascular anomaly, Camp Korey would love to welcome you as a volunteer! Reach out to learn more.)
When: July 12-16, 2026
Where: Camp Korey, Mt. Vernon, Washington
There are no registration fees to attend camp at Camp Korey, but space is limited. Register by ASAP for the best chance of securing your spot!
Travel Scholarships
CLOVES Syndrome Community is pleased to offer a limited number of scholarships to help offset the cost of travel for families who need them. Please email [email protected] with questions. Or click the button below to apply.
Applications are due April 19th