The Board of Directors of CLOVES Syndrome Community today announced the appointment of Lauren Beauregard as its new executive director, succeeding Kristen Davis who has guided the organization since 2009 to become a foremost patient-led advocacy organization for CLOVES Syndrome. Following a comprehensive search, the Board of Directors selected Lauren in January of this year, with a planned transition of duties in the coming weeks.

Sara Robertson, Board Chair, shared her enthusiasm: “We are excited to welcome Lauren Beauregard into her new role. Her outstanding capabilities in team building, project management and operational leadership, coupled with her deep commitment to our cause, make her the ideal leader for our community at this pivotal time. We are confident in her ability to spearhead innovative solutions to meet our community’s unique needs.”

Lauren Beauregard’s journey with the CLOVES Syndrome Community, sparked by her daughter Kiki’s diagnosis in 2015, has seen her deeply involved, notably contributing on the Family Advisory Council since early 2020. Her unique blend of personal commitment as a CLOVES mom and her expansive professional expertise in project leadership, strategic vision and community engagement enriches her new role. With skills in public speaking, budget management and effective communication, Lauren is exceptionally equipped to steer the organization towards compassionate innovation and strategic growth.

On her appointment, Lauren shared, “CLOVES Syndrome Community has been a beacon for my family and for me personally. Accepting the role of Executive Director is both an honor and a profound responsibility. I am grateful for Kristen’s mentorship and the solid foundation she established. I am committed to advancing the legacy Kristen created, enhancing the lives of those affected by CLOVES Syndrome.”

Under Lauren’s leadership, the organization looks forward to expanding its outreach, enhancing its support programs and driving forward innovative research initiatives. Lauren’s appointment marks the beginning of a new chapter for the CLOVES Syndrome Community, one that will continue to be written with the invaluable contributions of our members, volunteers and partners worldwide.

The Board extends heartfelt gratitude to Kristen Davis for her inspirational leadership and dedication, fueled by the courage of her daughter Riley and the strength of our community members who face CLOVES Syndrome with resilience and love. Kristen will remain an active part of CLOVES Syndrome Community, lending her experience and compassion to the organization’s new chapter.

We invite you to join us in welcoming Lauren and to learn more about our ongoing efforts and how you can support the CLOVES Syndrome Community. Visit our website for more information and upcoming events.

About CLOVES Syndrome Community

CLOVES Syndrome Community is a patient-led advocacy organization where people with CLOVES Syndrome are at the center of our community. We believe all people with CLOVES Syndrome deserve access to expert medical care, safe and effective treatment options and an improved quality of life. We believe in bringing together our global community’s knowledge, creativity and optimism to advance innovative research for new treatments of CLOVES Syndrome. Our leadership includes our Executive Director, Board of Directors, Scientific Advisory Council and our Family Advisory Council. Informed by thought leaders within the scientific and medical community, our leadership engages a variety of experts and advisors from around the world. Our community naturally extends to family members, supporters within the rare disease community, clinicians, researchers, industry partners and more. We are continually growing our diverse group of engaged stakeholders who are dedicated to our vision and values.