Annual CLOVES Syndrome Awareness Campaign – 2025
Happy CLOVES Syndrome Awareness Day! Here at CLOVES Syndrome Community, our mission is to improve the lives of those affected by CLOVES Syndrome through support, research, and education. Put another way, we strive to 🍀 Create opportunities for connection across…
.
Ignite Change with Us: Announcing the 30 Day Spark!
We’re beyond excited to announce our latest initiative, the 30 Day Spark! This is your chance to unleash your passion, connect with an amazing community, and make a real difference in the lives of individuals and families affected by CLOVES…
.
Million Dollar Bike Ride 2024
We are excited to announce that we are once again participating in the Million Dollar Bike Ride fundraiser! This year the event is being held June 8th in Philadelphia. Join Team CLOVES Riders for Research and raise funds to accelerate…
.
Betsy’s Camp
Betsy’s Camp 2024 is Friday June 14 – Monday June 17, 2024! Location: Barbara C. Harris Camp and Conference Center in Greenfield, NH. See you SOON at the lake!! CLOVES Family Camp is an annual opportunity that focuses on community,…
.
2023 CLOVES Family & Scientific Engagement Conference
Join us for the 2023 CLOVES Family and Scientific Engagement Conference on Saturday June 3, 2023 in Cleveland, Ohio. We are bringing together people with CLOVES and their families, clinicians, scientists, pharmaceutical leaders and supporters to connect, learn and…
.