Events

International Scientific Meeting for PIK3CA Related Conditions

International Scientific Meeting for PIK3CA Related Conditions

Thursday October 28 – Friday October 29, 2021 The International Scientific Meeting for PIK3CA Related Conditions is hosted and sponsored by CLOVES Syndrome Community, in collaboration with Chairs Dr. Denise Adams of CHOP, Dr. Miikka Vikkula of de Duve Institute…

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Awareness Day

Awareness Day

CLOVES Awareness day is every year on August 3rd.  Join us in raising awareness, support, and funds for CLOVES Syndrome in the weeks leading up to August 3rd. We also post awareness images on Instagram , Facebook and Twitter for you to share with friends…

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VACOM Study Information Session

VACOM Study Information Session

Join Dr. Bryan Sisk and Dr. Anna Kerr for an information session on Saturday June 26th from 1-2:30 EST to learn about the VACOM research study. The goal of this project is to learn about communication and care experiences from…

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