Newly Diagnosed

Welcome! You are probably visiting this page because you or someone you know was recently diagnosed with CLOVES Syndrome or PIK3CA Related Overgrowth Spectrum (PROS). We would like to welcome you to our community and share with you all of the resources we have to offer.

Our online support group:

We feel that it is important to connect with others who understand what you are going through and can offer support during difficult times. We encourage you to get involved by meeting other families online.

If you would like CLOVES Syndrome Community to mail you a welcome packet, please email us at [email protected].

Kristen Davis, CLOVES Syndrome Community

Contact Us:

CLOVES Syndrome Community
PO Box 406 West Kennebunk, ME 04094

Toll free (833)-4CLOVES

[email protected]