Meet Rad

We found out our baby boy had CLOVES Syndrome when I was 7 months pregnant with him. We were fearful of the unknown but Rad came out happy, calm, and full of strength. He is the happiest baby and we are all learning and advocating together. Physical milestones are taking longer than the average baby, but Rad is determined to accomplish everything in his own way. After a horrible experience with doctors last year, I – Rad’s mom – am determined to advocate for my son, for CLOVES Syndrome, and all children with a rare disease!