CLOVES Syndrome Community Receives $450,000 Award from Chan Zuckerberg Initiative

CLOVES Syndrome Community Receives $450,000 Award from Chan Zuckerberg Initiative Transformative grant will empower a patient community to accelerate collaborative research against CLOVES Syndrome, a rare genetic disorder KENNEBUNK, ME — (February 3, 2020) — Rare disease is anything but rare. As many as 7,000 rare diseases affect 400 million people globally. The vast majority are

Read More

.

$20,000 Research Donation

Thanks to your support and our successful Fall 2018 Fundraising efforts, we’ve made another research donation. On February 27, 2019 we donated $20,000 to Canaud Lab for their continued work on CLOVES/PROS. This donation will be used for the creation of animal models to test PIK3CA inhibitors and to study PIK3CA related overgrowth physiopathology.A note

Read More

.