Kristen Davis

Kristen Davis founded CLOVES Syndrome Community in 2009, after her daughter Riley was diagnosed with CLOVES. At that time, no organization existed to support families and people living with this rare disease. CSC became a non-profit organization in July 2011. Kristen was the Executive Director of CLOVES Syndrome Community for 13 years, before stepping down in April of 2024. Her life journey and time at CSC has helped her study the art of riding the edges of impermanence, experiencing vast joy and great grief and witnessing ultimate hope and possibility each day.