Kristen created CLOVES Syndrome Community in 2009, after her daughter Riley was one of the first to be diagnoses with CLOVES Syndrome. At that time, no organization existed to support people living with this rare disease. Now CLOVES Syndrome Community is the foremost non-profit patient advocacy groups for people with CLOVES, and it’s all thanks to Kristen!
While Kristen remains part of our community, she has passed the baton of leadership to a new Executive Director, but the momentum she created for this organization keeps going!
To honor Kristen’s commitment, the Board of Directors is pleased to introduce the Kristen Davis Momentum Grant.
The Kristen Davis Momentum Grant is an annual grant that will be awarded to one proposed project with the potential to create the greatest impact toward CSC’s mission: An improved quality of life for those affected by CLOVES Syndrome.