2023 CLOVES Family & Scientific Engagement Conference

Registration is open!

Join us for the 2023 CLOVES Family and Scientific Engagement Conference on Saturday June 3, 2023 in Cleveland, Ohio.  

We are bringing together people with CLOVES and their families, clinicians, scientists, pharmaceutical leaders and supporters to connect, learn and to hear the latest updates in research. 

Together we all share the same mission: to improve the lives of those living with CLOVES Syndrome and to accelerate research and treatment of all PROS Conditions.


Embassy Suites by Hilton Cleveland Rockside in Cleveland, Ohio

We have a limited number of hotel rooms reserved for our guests. Please reserve your room early using this link! Breakfast is included with your hotel reservation.

Rooms & Rates

  • 2 Room Suite-2 Double Beds-nonsmoking – $139.00
  • 2 Room Suite-1 King Bed-nonsmoking – $139.00
  • 1 King Suite Mobility Access Roll-in Shower – $139.00

Closest international airport – Cleveland Hopkins International


Friday June 2nd from 5 – 8 pm

  • CLOVES Community Dinner at Embassy Suites Cleveland Rockside

Saturday June 3rd from 9am – 5pm

Confirmed speakers include:

  • Dr. Denise Adams, Director of the CVAP at Children’s Hospital of Philadelphia

Other sessions include: small group discussions and opportunities to learn and connect, shoe maker workshop and life hacks and the latest research and treatment updates.

Sunday June 4th

  • Optional family friendly activities TBD

Childcare: We hope to provide childcare for kids over the age of six years, however have not contracted with a provider at the time of registration opening.

Teen Programming: If there are enough teens registered, we will plan some teen specific conference programming, however this is TBD at this time.

Register here! Deadline to register for the conference is Friday April 28, 2023.

About registration : There are two types of tickets. One option is for the Friday Community Dinner on June 2nd AND conference registration on June 3rd. The second option is for Conference registration only. Please review the ticket options below in full before registering, and reach out to [email protected], if you have any questions.

We have a limited amount of free registrations for those who cannot afford to pay the admission price. If you would like to request a discounted admission, please email Shannon Burkoth at [email protected]

Need a travel scholarship to attend? Apply here. Deadline to apply is Friday March 10, 2023.

Sponsorship opportunities for our conference.

Why sponsor this meeting?

The 2023 CLOVES Family and Scientific Engagement Conference creates a strong community of support for people with CLOVES and their families. It is the premier forum in North America for family support, education, scientific presentations, networking, and research participation.  Email Noreen Fairley at [email protected] with any sponsorship questions.

All conference details will be posted here in the coming months.

Register now!