Spreading awareness for CLOVES Awareness Day
For this year’s CLOVES Awareness Day on August 3rd, we wanted to share the voices of our community. We asked our community to share challenges, worries and what matters most to them. We believe that your opinion matters and that…
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CLOVES Syndrome Community Receives $450,000 Award from Chan Zuckerberg Initiative
CLOVES Syndrome Community Receives $450,000 Award from Chan Zuckerberg Initiative Transformative grant will empower a patient community to accelerate collaborative research against CLOVES Syndrome, a rare genetic disorder KENNEBUNK, ME — (February 3, 2020) — Rare disease is anything but rare.…
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$20,000 Research Donation
Thanks to your support and our successful Fall 2018 Fundraising efforts, we’ve made another research donation. On February 27, 2019 we donated $20,000 to Canaud Lab for their continued work on CLOVES/PROS. This donation will be used for the creation…
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