CLOVES Syndrome Community Receives $450,000 Award from Chan Zuckerberg Initiative
CLOVES Syndrome Community Receives $450,000 Award from Chan Zuckerberg Initiative Transformative grant will empower a patient community to accelerate collaborative research against CLOVES Syndrome, a rare genetic disorder KENNEBUNK, ME — (February 3, 2020) — Rare disease is anything but rare.…
.
$20,000 Research Donation
Thanks to your support and our successful Fall 2018 Fundraising efforts, we’ve made another research donation. On February 27, 2019 we donated $20,000 to Canaud Lab for their continued work on CLOVES/PROS. This donation will be used for the creation…
.