2022 Million Dollar Bike Ride
We’re riding again this year as an Independent Fundraising team at the in person Million Dollar Bike Ride on Saturday June 11, 2022. Our team is the CLOVES Riders for Research. We’re looking for team members to register to ride, commit…
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Request for Proposals: 2022 Research Grant Program
CLOVES Syndrome (“CLOVES”) is a rare disorder. CLOVES syndrome is rare and very variable; ranging from mild to severe. The common features in most patients allow for proper diagnosis and distinction from other syndromes. The most consistent features of CLOVES…
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International Scientific Meeting for PIK3CA Related Conditions
Thursday October 28 – Friday October 29, 2021 The International Scientific Meeting for PIK3CA Related Conditions is hosted and sponsored by CLOVES Syndrome Community, in collaboration with Chairs Dr. Denise Adams of CHOP, Dr. Miikka Vikkula of de Duve Institute…
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Awareness Day
CLOVES Awareness day is every year on August 3rd. Join us in raising awareness, support, and funds for CLOVES Syndrome in the weeks leading up to August 3rd. We also post awareness images on Instagram , Facebook and Twitter for you to share with friends…
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VACOM Study Information Session
Join Dr. Bryan Sisk and Dr. Anna Kerr for an information session on Saturday June 26th from 1-2:30 EST to learn about the VACOM research study. The goal of this project is to learn about communication and care experiences from…
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