Events

2023 CLOVES Family & Scientific Engagement Conference

2023 CLOVES Family & Scientific Engagement Conference

Join us for the 2023 CLOVES Family and Scientific Engagement Conference on Saturday June 3, 2023 in Cleveland, Ohio.   We are bringing together people with CLOVES and their families, clinicians, scientists, pharmaceutical leaders and supporters to connect, learn and…

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2022 Million Dollar Bike Ride

2022 Million Dollar Bike Ride

We’re riding again this year as an Independent Fundraising team at the in person Million Dollar Bike Ride on Saturday June 11, 2022.  Our team is the CLOVES Riders for Research. We’re looking for team members to register to ride, commit…

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Request for Proposals: 2022 Research Grant Program

Request for Proposals: 2022 Research Grant Program

CLOVES Syndrome (“CLOVES”) is a rare disorder. CLOVES syndrome is rare and very variable; ranging from mild to severe. The common features in most patients allow for proper diagnosis and distinction from other syndromes. The most consistent features of CLOVES…

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International Scientific Meeting for PIK3CA Related Conditions

International Scientific Meeting for PIK3CA Related Conditions

Thursday October 28 – Friday October 29, 2021 The International Scientific Meeting for PIK3CA Related Conditions is hosted and sponsored by CLOVES Syndrome Community, in collaboration with Chairs Dr. Denise Adams of CHOP, Dr. Miikka Vikkula of de Duve Institute…

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Awareness Day

Awareness Day

CLOVES Awareness day is every year on August 3rd.  Join us in raising awareness, support, and funds for CLOVES Syndrome in the weeks leading up to August 3rd. We also post awareness images on Instagram , Facebook and Twitter for you to share with friends…

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