News

Our 2nd 2021 Research Recipient

Our 2nd 2021 Research Recipient

adminSep 7, 20212 min read

We are pleased to announce the second recipient of our 2021 Research Grant.  Dr. Robert Semple will receive a $25,000 grant for the project titled “Human Pluripotent Stem Cells as a Model to Interrogate Pathogenesis and Developmental Origins of CLOVES”…

Read More

.
Our 2021 Research Grant Recipient

Our 2021 Research Grant Recipient

Kristen DavisMay 28, 20212 min read

We are pleased to announce the recipient of our 2021 Research Grant.  Ana Angulo-Urarte will receive a $25,000 grant for the project titled “Identifying the molecular impact of PIK3CA variants in PROS towards stratification of patients and personalized medicine.”  This…

Read More

.
Vascular Anomalies Communication (VACOM) Research Study

Vascular Anomalies Communication (VACOM) Research Study

Kristen DavisMay 28, 20212 min read

We’re pleased to be supporting Dr. Bryan Sisk’s research study titled “Vascular anomalies communication” (VACOM) with a $10,000 grant.   Please read about this research study below.  We’ll share additional information with our community soon about how you can participate in…

Read More

.
AllStripes Logo

Accelerating research with AllStripes

Kristen DavisApr 9, 20212 min read

CLOVES Syndrome Community is excited to partner with the medical data science company AllStripes to create a research database that will power new PIK3CA-related overgrowth spectrum (PROS) research studies. To move this research forward, we’re looking for families/patients willing to…

Read More

.
Covid-19

Covid-19

adminDec 22, 20202 min read

Surveillance Epidemiology of Coronavirus (COVID-19) Under Research Exclusion for Vascular Anomalies. Researchers need information on COVID-19 and vascular anomalies. If you have a vascular anomaly and contract COVID-19, please ask your doctor to complete the brief questionnaire below. The SECURE-VA registry is…

Read More

.