News

Spreading awareness for CLOVES Awareness Day

Spreading awareness for CLOVES Awareness Day

adminJul 28, 20201 min read

For this year’s CLOVES Awareness Day on August 3rd, we wanted to share the voices of our community.  We asked our community to share challenges, worries and what matters most…

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CLOVES Syndrome Community Receives $450,000 Award from Chan Zuckerberg Initiative

CLOVES Syndrome Community Receives $450,000 Award from Chan Zuckerberg Initiative

adminFeb 3, 20204 min read

CLOVES Syndrome Community Receives $450,000 Award from Chan Zuckerberg Initiative Transformative grant will empower a patient community to accelerate collaborative research against CLOVES Syndrome, a rare genetic disorder KENNEBUNK, ME –…

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$20,000 Research Donation

$20,000 Research Donation

adminMar 10, 20191 min read

Thanks to your support and our successful Fall 2018 Fundraising efforts, we’ve made another research donation. On February 27, 2019 we donated $20,000 to Canaud Lab for their continued work…

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