Thursday October 28 – Friday October 29, 2021
The International Scientific Meeting for PIK3CA Related Conditions is hosted and sponsored by CLOVES Syndrome Community, in collaboration with Chairs Dr. Denise Adams of CHOP, Dr. Miikka Vikkula of de Duve Institute and Dr. Jean Zhao of Dana-Farber Cancer Institute. We are hosting this meeting as part of our patient led PIK3CA Related Conditions Research Network development with the Rare As One Network. This is a virtual two day meeting.
We invite you to attend the first International Scientific Meeting for PIK3CA Related Conditions, where we will focus on the diverse range of phenotypes of the spectrum that share a PIK3CA mutation.
The goals for this meeting are:
- To bring together the experts in the PIK3CA pathway including clinicians, clinical researchers and basic scientists to allow opportunities to present new information, share data, foster collaboration and encourage networking
- To stimulate new ideas
- To encourage new researchers to enter the field, to collaborate with others in the field and to collaborate with our patient organizations
- To identify the gaps and unmet needs for our heterogenous patient populations
The conditions covered in this meeting include:
- CLAPO Syndrome
- CLOVES Syndrome
- Facial Infiltrating Lipomatosis (FIL)
- Fibroadipose Vascular Anomaly (FAVA)
- Generalized Lymphatic Anomaly (GLA)
- Isolated Lymphatic Malformation
- Isolated Venous Malformation
- Klippel – Trenaunay Syndrome (KTS)
- Hemihyperplasia‐multiple lipomatosis syndrome (HHML)
- Megalencephaly-capillary malformation syndrome (M-CM)
Opening Keynote Speaker:
- Lewis Cantley, PhD
- Meyer Director, Sandra and Edward Meyer Cancer Center
- Professor of Cancer Biology, Joan and Stanford I. Weill Department of Medicine
Lewis Cantley, Ph.D., has made significant advances in cancer research stemming from his discovery of the signaling pathway phosphoinositide 3-kinase (PI3K) in 1984. A graduate of West Virginia Wesleyan College (B.S., Chemistry, 1971) and Cornell University (Ph.D., Biophysical Chemistry, 1975), Dr. Cantley has been a professor at Tufts University and Harvard University. He served as director of the Beth Israel Deaconess Cancer Center and is currently the Meyer Director of the Sandra and Edward Meyer Cancer Center at Weill Cornell Medicine. The author of more than 400 papers and 50 book chapters, Dr. Cantley has received several prestigious accolades, including membership in the American Academy of Arts and Sciences, the National Academy of Sciences, the Institute of Medicine of the National Academies, and the European life sciences academy EMBO.
Thursday October 28, 2021 – 10am – 3pm EST
Social event to follow – from 3-5pm
Friday October 29, 2021 – 10am – 3pm EST
Early Bird Registration available until June 15, 2021:
Physician/Researcher – $159
Industry/Other – $159
NP/Allied Health Professional – $79
Graduate/Medical Student/Post Doc fellow – $49 *Registration sponsorships available*
Patients/Caregivers – Free
Registration after June 15, 2021:
Physician/Researcher – $229
Industry/Other – $229
NP/Allied Health Professional – $119
Graduate/Medical Student/Post Doc fellows – $89 *Registration sponsorships available*
Patients/Caregivers – Free
Registration for the meeting includes:
•Access to all sessions
•Access to the social event on October 28, 2021
•Access to recorded sessions until November 29, 2021
•Access to the exhibit hall
For more information and additional inquiries, including registration sponsorship details, please email [email protected]
Pending accreditation: An application will be made to the UEMS EACCME® for CME accreditation of this event.
The UEMS-EACCME® has an agreement of mutual recognition of credits with the American Medical Association (AMA) for live educational events and for e-learning materials.
The Conference Organizing Committee invites authors to submit abstracts to be considered for inclusion in the Scientific Program for either oral or poster presentations. We encourage submissions that cover the entire spectrum of PIK3CA Related Conditions including: CLOVES, Macrodactyly, CLAPO, DCMO, KTS, FAVA, M-CM, HHML, Isolated Lymphatic and Venous Malformations, GLA and FIL.
The conference sessions will be organized around the themes of Basic Science, Preclinical Research, Diagnosis/Natural History and Treatment, however other topics of research are encouraged and welcomed for submission. Within each of these themes we will bring together basic scientists and clinicians, in the hope of stimulating and educating both.
Abstract submissions open May 1, 2021 and are due June 15, 2021 at 11:59pm EST. All submitters will receive notification of abstract acceptance and presentation type by August 2, 2021.
Scientific Meeting Chairs:
- Dr. Denise Adams
- Pediatric Hematologist/Oncologist Director, Comprehensive Vascular Anomalies Program (CVAP) at Children’s Hospital of Philadelphia
- Co-Director, Frontier CVAP Program
- Alan Cohan Endowed Chair In Pediatrics
- Professor, University of Pennsylvania
- Dr. Miikka Vikkula
- Professor of Human Genetics
- Co-Director of de Duve Institute
- Jean J. Zhao, Ph.D.
- Professor of Biological Chemistry and Molecular Pharmacology
- Dana-Farber Cancer Institute
- Harvard Medical School
The planning committee for this meeting includes the following patient advocacy organizations: